The Arab Gulf University recently organized a lecture entitled “The importance of rare diseases in medical education, community services, and awareness“In the presence of a group of academics and medical students, with the aim of highlighting the role of medical education in promoting awareness about rare diseases and the importance of early diagnosis.
The lecture was given a consultant genetic diseases at the university The Bahraini campaign for rare diseases, Dr. Christina SkripnikIt dealt with the importance of including rare diseases in the medical curricula of the bachelor’s and graduate studies, with the aim of enhancing the knowledge of future medical cadres, and enabling them to early and precisely diagnose these cases, which contributes to improving health care and effectively managing treatment..
In addition, the Arab Gulf University organized a rare disease campaign For more than 12 GeneralAchieving a widespread impact on societal awareness on these diseases, by organizing awareness activities, scientific seminars, and launching support campaigns for patients and their families. The campaign also attracted a large number of volunteers, including doctors, medical students and community members, which contributed to building an integrated support network for those with rare diseases..
In this context, she confirmed Dr. Christina Skripnik On the importance of the continuity of these efforts, noting that enhancing the awareness of the medical community and the general community with rare diseases directly contributes to improving early diagnosis opportunities and providing appropriate care for the injured, which reflects positively on the quality of their lives.
This and thisStatistics indicate that there is more than one 7,000 Rare It is known to this day, and the sum of these diseases affects a way 300 One million people around the worldThat is, equivalent 1 Every 20 people. Despite this, the majority of patients face great difficulties in reaching the correct diagnosis, as it takes average 4 To 5 years For an accurate diagnosis, during this period, patients often receive wrong or late diagnoses. As well 80% Of these diseases It has genetic origin, and half of those affected by children, which confirms the urgent need to enhance medical and societal awareness in these rare cases..
